RIEC21 – Research Informatics Engagement Coordinator

Alzheimer’s Research UK is the UK’s leading dementia research charity dedicated to diagnosis, prevention, treatment and cure. Backed by our passionate scientists and supporters, we’re challenging the way people think about dementia, bringing together the people and organisations who can speed up progress, and investing in cutting-edge research. We believe that medical research can and will deliver life-changing preventions, treatments and one day, a cure for dementia. Alzheimer’s Research UK exists to make this happen and with your support, we’ll make life-changing breakthroughs possible.

The Research Informatics team at ARUK is leading the coordination of the Early Detection of Neurodegenerative Diseases (EDoN) initiative. EDoN is a growing and exciting collaboration to create a digital toolkit and machine learning models to enable the detection of specific dementia-causing diseases decades before overt cognitive symptoms become apparent. EDoN brings together experts in data science, digital technology and neurodegeneration from over 49 universities, institutes, research projects, patient cohorts and technology companies from across Europe and the US.

The initiative is delivered through three Hubs – Clinical Hub, Digital Hub and Analytics Hub, along with two cross-cutting workstreams on commercialisation and health system engagement. The Hubs contain multidisciplinary expertise from across universities, cohorts, institutes and research projects, as well as seeking external advisors to support key areas of activity.

The Research Informatics team oversees the smooth running of EDoN, manages and builds relationships with partners and collaborators and looks for new opportunities to add value to the project working in partnership with all of its stakeholders.

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